...or I should say The Demon's next steps. We had a GI appointment today. We discussed the options.
Option 1: Repeat upper and lower scopes then surgery.
Option 2: Test for a virus (I can't remember specifics) then Remicade.
Option 3: Methotrexate.
I flat out asked Dr. F what would he do if The Demon were his son. He said without a doubt, Remicade. That made our decision a little easier. We (his dad and I) had already decided on Remicade. So.. the next step is a sigmoidoscopy to check for the virus. A sigmoidoscopy is, supposedly a quick biopsy requiring missing a day of school & light sedation. No biggie. Then after the insurance approval, we start Remicade infusions. The Remicade is given intravenously over a period of 4-6 hours. It's given at week 0. Then in 2 weeks. Then (I think) week 6. Then it's given every 8 weeks after.
We also have to schedule a consultation with the pediatric surgeons to be fully educated on the surgery that will, eventually, be needed.
I think I am OK with this decision. I'm still not 100% certain that this is the right choice... but I think I need to believe it's so.
I need to believe it's the right decision... for him.
Although it is a hard decision, you made the best decision you could based on medical advice and a lot of consideration. You can feel good that you are doing what you believe is right for Kane.
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Sounds like you are doing a great job with him! The doc gave you great advice..I just hope this helps him!
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