I really, REALLY would love to know why some families have it so much harder than others. I don't wish bad onto people (read: most people), really, but wtf!?
I grew up with a mother who, by the time I was in the 6th grade was in a wheel chair. She was able to walk very short distances with a walker, but that all ended by the time I was a senior in high school. She was the type of person that LOVED her job. How many people can honestly say they love to wake up in the morning and head to work?? She was one of those people. But by the time I was in high school, her MS forced her into permanent disability. Not fair.
The Demon now is going through his own issues. WHY? I don't understand why it seems like we can never catch any breaks. He is now going to the bathroom close to 10 times a day. I will be calling the GI doctor first thing Monday morning.. and I'm almost positive that the course of treatment will be Prednisone. We can't get through one full year without his colon giving him grief. Ugh. Not fair.
I know, I know.. it could be so much worse. Just walking the halls at Children's Hospital puts life into perspective.. but try explaining that to an 11 year old as his mommy has to help with enemas. I hate it. I hate everything about disease and illness. I suppose I should repeat the saying "God only gives you what he knows you can handle" WELL, I'm done "handling" this shit. I'm tired of everything that my baby has to go through. I wish it were me, and not him.
It's just not fair.
I grew up with a mother who, by the time I was in the 6th grade was in a wheel chair. She was able to walk very short distances with a walker, but that all ended by the time I was a senior in high school. She was the type of person that LOVED her job. How many people can honestly say they love to wake up in the morning and head to work?? She was one of those people. But by the time I was in high school, her MS forced her into permanent disability. Not fair.
The Demon now is going through his own issues. WHY? I don't understand why it seems like we can never catch any breaks. He is now going to the bathroom close to 10 times a day. I will be calling the GI doctor first thing Monday morning.. and I'm almost positive that the course of treatment will be Prednisone. We can't get through one full year without his colon giving him grief. Ugh. Not fair.
I know, I know.. it could be so much worse. Just walking the halls at Children's Hospital puts life into perspective.. but try explaining that to an 11 year old as his mommy has to help with enemas. I hate it. I hate everything about disease and illness. I suppose I should repeat the saying "God only gives you what he knows you can handle" WELL, I'm done "handling" this shit. I'm tired of everything that my baby has to go through. I wish it were me, and not him.
It's just not fair.
There is nothing worse than watching the people you love suffer...especially your baby! I am so sorry you are going through this!
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